Blogs/Articles:

Begley, S. (2017, September 18). ‘Every time it’s a battle’: In excruciating pain, sickle cell patients are shunted aside. STAT. https://www.statnews.com/2017/09/18/sickle-cell-pain-treatment/?fbclid=IwAR179xianRUBTiKFKfcpcAQKrjwhH8lzNLh8Xu8E_8wXt-VLgN2w6DamhZs

Ewing, A. (2021, April 1). Black History Month: Bearing the torch of equity as an African-American genetic counselor and scientist. NSGC Perspectives. https://perspectives.nsgc.org/Article/bearing-the-torch-of-equity

Hodges, P.D., Eichmeyer, J., Kapely, A., & Ricker, C. (2022, July 6). ¡Yo también quiero hablar español!. NSGC Perspectives. https://perspectives.nsgc.org/Article/161yo-tambi233n-quiero-hablar-espa241ol

Hunt, S. (2022, June 1). Diversity Dialogue: Confronting Ableism in Medical Professions. NSGC Perspectives. https://perspectives.nsgc.org/Article/diversity-dialogue-confronting-ableism-in-medical-professions 

Mcclam, E. (2001, June 7). Racial divide seen in Down syndrome deaths. ABC News. https://abcnews.go.com/Health/story?id=117407&page=1

Qalser, F. (2020, April 24). On National DNA Day, scientists are trying to take the colonialism out of genetics. Massive Science. https://massivesci.com/notes/dna-day-decolonize-genetics-indigenous-precision-medicine/

Resta, R. (2020, June 12). A Selective Amnesia - Sterilizing the history of genetics. The DNA Exchange. https://thednaexchange.com/2020/06/12/a-selective-amnesia-sterilizing-the-history-of-genetics/

Resta, R. (2020, June 28). Selective Amnesia, Part 2: Guardians of the gene pool. The DNA Exchange. https://thednaexchange.com/2020/06/28/selective-amnesia-part-2-guardians-of-the-gene-pool/

Resta, R. (2020, July 6). Selective Amnesia, Part 3: We are judged on our history. The DNA Exchange. https://thednaexchange.com/2020/07/06/selective-amnesia-part-3-we-are-judged-on-our-history/

Rivers, B. (2018, November 16). This is what I know. Now what can we do? - Racial diversity in genetic counseling. UC Genetic Counseling Program. http://ucgeneticcounseling.blogspot.com/2018/11/this-is-what-i-know-now-what-can-we-do_16.html

Stallings, E. (2019, July 27). Genetic counselors of color tackle racial, ethnic disparities in health care. NPR. https://www.npr.org/sections/health-shots/2019/07/27/745470299/genetic-counselors-of-color-tackle-racial-ethnic-disparities-in-health-care

Stone, J. (2015, June 19). Sickle cell disease highlights racial disparities in healthcare. Forbes. https://www.forbes.com/sites/judystone/2015/06/19/sickle-cell-disease-highlights-racial-disparities-in-healthcare/?sh=7dcf8fb13b75

Vaz-Baker, F. (2020, June 8). The Choice - A somewhat lengthy letter from an exhausted Black person. UC Genetic Counseling Program. https://ucgeneticcounseling.blogspot.com/2020/06/the-choice-somewhat-lengthy-letter-from.html?spref=tw

Zayhowski, K & Sheridan N. (2022, June 27). Queer Erasure in Standards of Professionalism. NSGC Perspectives. https://perspectives.nsgc.org/Article/queer-erasure-in-standards-of-professionalism 

Books:

Braun, L. (2021). Breathing race into the machine: The surprising career of the spirometer from plantation to ... genetics. Univ of Minnesota Press.

Byrd, W. M., & Clayton, L. A. (2012). An American Health Dilemma: A Medical History of African Americans and the Problem of Race: Beginnings to 1900. Routledge.

Collins, F. S. (2014). The language of life: Dna and the revolution in personalized medicine. Place of publication not identified: HarperCollins e-Books.

Davis, D.-A. (2020). Reproductive injustice: Racism, pregnancy, and premature birth. NYU Press.

Fields, K. E., & Fields, B. J. (2022). Racecraft: The soul of inequality in American life. Verso Books.

Hoberman, J. M. (2016). Black and blue: The origins and consequences of medical racism. University of California Press.

Jablonski, N. G. (2012). Living Color: The Biological and Social Meaning of Skin Color. University of California Press.

Kean, S. (2012). The violinist's thumb: And other lost tales of love, war, and genius, as written by our genetic code. New York: Little, Brown and Co.

Nelson, A. (2016). The Social Life of DNA: Race, Reparations, and Reconciliation After the Genome. Beacon Press. 

Pistoi, S. (2019). DNA nation: How the internet of genes is changing your life. Crux Publishing.

Reich, D. (2018). Who we are and how we got here: Ancient DNA and the new science of the human past. Pantheon Books.

Ridley, C. R., & ProQuest (Firm). (2005). Overcoming unintentional racism in counseling and therapy: A practitioner's guide to intentional intervention. Sage Publications.

Roberts, D. (2012). Fatal invention: How science, politics, and big business re-create race in the Twenty-first Century. New York: The new Press.

Saini, A. (2020). Superior: The return of race science. Beacon Press.

Tweedy, D. (2016). Black man in a white coat: A doctor's reflections on race and medicine. Picador.

Podcasts:

Abumrad, J., Krulwich, R. (Hosts). (2008, December 15). Race [Audio podcast episode]. In Radiolab. WNYC Studios. https://radiolab.org/episodes/91653-race

Demby, G., Meraji S.M. (Hosts). (2019, July 10). Is ‘Race Science’ Making a Comback? [Audio podcast episode]. In Codeswitchers. NPR. https://www.npr.org/sections/codeswitch/2019/07/10/416496218/is-race-science-making-a-comeback

Shodiya, T., Whatley, Z. (Hosts). (2019, June 7). How not to get away with murder. (No. 009) [Audio podcast episode]. In Dope labs. MegaOhm Media. https://www.dopelabspodcast.com/podcast-episodes/2019/6/6/lab-009-how-not-to-get-away-with-murder?rq=genetic

Zayhowski, K & Jimmons, L. (2022, May 13). Empowering Our Queer Colleagues. NSGC Community Conversation #3. https://www.youtube.com/watch?v=kFt2Hh_YAw4 

(2022, July 5). Advocating for the Intersex Community: How to Begin Dismantling a History of Harm. [Audio podcast episode]. In NSGC Podcast Series. National Society of Genetic Counselors. https://podcasts.apple.com/us/podcast/nsgc-podcast-series/id1398417753?i=1000568934555 

Journal Articles:

Bao, A. K., Bergner, A. L., Chan-Smutko, G., & Villiers, J. (2020). Reflections on diversity, equity, and inclusion in genetic counseling education. Journal of genetic counseling, 29(2), 315–323. https://doi.org/10.1002/jgc4.1242. PMID: 32167623

Carmichael, N., Redlinger-Grosse, K., & Birnbaum, S. (2020). Conscripted curriculum: The experiences of minority genetic counseling students. Journal of genetic counseling, 29(2), 303–314. https://doi.org/10.1002/jgc4.1260. PMID: 32198906

Dasgupta S. (2020). An Anti-Racism Toolkit for the Genetics Educator. Genetics in medicine : official journal of the American College of Medical Genetics, 22(11), 1911–1912. https://doi.org/10.1038/s41436-020-00937-6. PMID: 32788666

Donovan B. M. (2021). Ending genetic essentialism through genetics education. HGG advances, 3(1), 100058. https://doi.org/10.1016/j.xhgg.2021.100058. PMID: 35047848

Garrett, J. R., Lantos, J. D., Biesecker, L. G., Childerhose, J. E., Chung, W. K., Holm, I. A., Koenig, B. A., McEwen, J. E., Wilfond, B. S., Brothers, K., & Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group (2019). Rethinking the "open future" argument against predictive genetic testing of children. Genetics in medicine : official journal of the American College of Medical Genetics, 21(10), 2190–2198. https://doi.org/10.1038/s41436-019-0483-4. PMID: 30894702

Gómez-Trillos, S., Sheppard, V. B., Graves, K. D., Song, M., Anderson, L., Ostrove, N., Lopez, K., Campos, C., Gonzalez, N., & Hurtado-de-Mendoza, A. (2020). Latinas' knowledge of and experiences with genetic cancer risk assessment: Barriers and facilitators. Journal of genetic counseling, 29(4), 505–517. https://doi.org/10.1002/jgc4.1201. PMID: 31883202

Joseph, G., Pasick, R. J., Schillinger, D., Luce, J., Guerra, C., & Cheng, J. (2017). Information Mismatch: Cancer Risk Counseling with Diverse Underserved Patients. Journal of genetic counseling, 26(5), 1090–1104. https://doi.org/10.1007/s10897-017-0089-4. PMID: 28289853

K. E., & Clinical Genome Resource (ClinGen) Ancestry and Diversity Working Group (2020). Clinical Genetics Lacks Standard Definitions and Protocols for the Collection and Use of Diversity Measures. American journal of human genetics, 107(1), 72–82. https://doi.org/10.1016/j.ajhg.2020.05.005. PMID: 32504544

Kaseniit, K. E., Haque, I. S., Goldberg, J. D., Shulman, L. P., & Muzzey, D. (2020). Genetic ancestry analysis on >93,000 individuals undergoing expanded carrier screening reveals limitations of ethnicity-based medical guidelines. Genetics in medicine : official journal of the American College of Medical Genetics, 22(10), 1694–1702. https://doi.org/10.1038/s41436-020-0869-3. PMID: 32595206

Lee, L., Smith-Whitley, K., Banks, S., & Puckrein, G. (2019). Reducing Health Care Disparities in Sickle Cell Disease: A Review. Public health reports (Washington, D.C. : 1974), 134(6), 599–607. https://doi.org/10.1177/0033354919881438. PMID: 31600481

Manrai, A. K., Funke, B. H., Rehm, H. L., Olesen, M. S., Maron, B. A., Szolovits, P., Margulies, D. M., Loscalzo, J., & Kohane, I. S. (2016). Genetic Misdiagnoses and the Potential for Health Disparities. The New England journal of medicine, 375(7), 655–665. https://doi.org/10.1056/NEJMsa1507092. PMID: 27532831

Mayo-Gamble, T. L., Schlundt, D., Cunningham-Erves, J., Murry, V. M., Bonnet, K., Quasie-Woode, D., & Mouton, C. P. (2019). Sickle cell carriers' unmet information needs: Beyond knowing trait status. Journal of genetic counseling, 28(4), 812–821. https://doi.org/10.1002/jgc4.1124. PMID: 30969464

Popejoy, A. B., Crooks, K. R., Fullerton, S. M., Hindorff, L. A., Hooker, G. W., Koenig, B. A., Pino, N., Ramos, E. M., Ritter, D. I., Wand, H., Wright, M. W., Yudell, M., Zou, J. Y., Plon, S. E., Bustamante, C. D., Ormond, 

Vinekar K. (2021). Pathology of Racism - A Call to Desegregate Teaching Hospitals. The New England journal of medicine, 385(13), e40. https://doi.org/10.1056/NEJMpv2113508. PMID: 34551237

Waren, W. (2011). Using" Monopoly" to Introduce Concepts of Race and Ethnic Relations. Journal of Effective Teaching, 11(1), 28-35.